the Community of Friedrich Ataxia 

WELCOME

Welcome to the website of the Community of Freidrich Ataxia (CoFA). CoFA is a Non-governmental and a Non-profitable society. Basically promoting information to and about the community of Freidrich Ataxia.It's establised in June 2001 with the primary mission of encouraging and supporting research into Hereditary Ataxia,a group of neurological disorder which are chronic and progressive condition affecting coordination.
You will find information on Freidrich Ataxia (CoFA) and the related Sporadic Ataxias, including current research, abstracts and links to publications from scientific and medical journals, completed research, ongoing studies, as well as information for researchers, patients, patient families, and caregivers. The site also offers support and information for newly-diagnosed families.

Our MISSION:

1 )

The majority of people in Pakistan are poor. The patients can not reach skilled Doctors. At the most, they could reach the local general physicians. The aim of CoFA society is to develop a platform where paralyzed patients from all over the country will be able to access professional skilled Neurologists. It is our goal to provide free medication and diagnostic tests to all patients. After the diagnoses of Ataxia, we will provide them full attention and free help tools (wheelchair, walker, splint, Etc.). The whole project is based on self finance scheme. And we will try our best to manage all the expenses by our self.

2 )

We have started a monthly prayer services for the recuperation of all patients especially those suffering from Ataxia in CoFA. The prayer (Dua’a Mashlool), which means “prayer of paralyzed “, is related to Hazrat Ali (as). This was written in around 650 A.D.. A large number of people attend this prayer. After Dua’a ; special prayers are offered for the paralyzed peoples especially Ataxias.

3 )

CoFA has contacts with a renowned physiotherapy center. Which is providing us with facilities to gather our FA Patients in the Centre for physical Ataxian exercises. It is a weekly service. The centre has light and heavy exercise equipment under well-qualified physiotherapist attendants.

4 )

Community of Freidrich Ataxia has to confirm ataxias patients quantity in Pakistan. Because it is very important to know about the exact ataxias patient’s figure, in order to provide them with facilities and perform . our tasks more effectively.

5 )

An other important task of CoFA is to provide awareness to the ordinary people and especially to medical experts and the pharmacologists in Pakistan. And bring more information and provide news to the ataxias about the improvement and development in research regarding ataxia disease for therapy and treatment. And bring awareness in people in order to avoid inter-family marriages and control the procreation.



The CoFA (Community of Freidrich Ataxia), is the platform of people suffering from Ataxia (a Genetic Disease). It’s aim is to effort is to develop the awareness about this disease.

This is first such society in Pakistan and in the South East , working for all types of ataxia, especially Freidrich Ataxia. It provides latest research information and medicine & support to the people suffering from ataxia. This society is based in Gujrat city.

President of the CoFA is Syed Asim Shah (who is also suffered from FA).

Syed Khurram is the Senior Vice President of the Society.

General Secretary Syed Aftab.

Syed Moazam Ali is Finance Secretary.

Chief representative Syed Absar Hussain.

Publication Assistant Syed Zahid Shahbaz.

Head of research Dr. Assad Mahmood Butt Neurologist.

Executive Members Dr. Abid Hussain Shah, Dr. Mohammad Ikram (President PMA Gujrat), Capt.(Retd.) Dr. Rokhsana Naz Gynecologist, Dr. Fozia Irshad, Pervaiz Yasir (Journalist).

The website is developed by Syed Jafar Kharazmi.

This is non governmental and non profitable Society, basically voluntarily and on charitable society.

The free membership form is available on the site and the office for the Ataxias.

Your donations will be help for Ataxias.

We have celebrated our first Ataxia awareness Day on 25th September 2001. The ataxia awareness Day is held on 25th September. And the Freidrich Ataxias awareness Day is on May 18th.



THANK YOU very much for the time you have spared and visited the CoFA site.

"O' Allah, Grant us the strength to help those in need, and give us the wisdom to bear the burden of the disease.

"Dear Creator! We are well aware that your creations are absolute from all defects, so send your blessings on Mohammad (saww) and his family and grant us all the blessings you have favored upon them."

The CoFA society welcomes any suggestions and donations in the progress of this sanctified effort.

Please send all your inquires to :

I hope you enjoyed my site..........Come again.

Headquarter
Nzr-e-Qaim, Madina Road, Gujrat, 50700. Pakistan
Tel:+92 - 332 - 837 - 6456
Website: www.cofa.s5.com
www.ataxiapakistan.multiply.com
e-mail: ataxiapakistan@hotmail.com
ataxiapakistan@yahoo.com

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Poem About FA

FREIDRIECHS ATAXIA

Walking to school was a big deal,

Not walking straight, an idiot I would feel,

All the kids would wisper and name call as I walked passed,

I hope'd it would never last,

As time went on, the clumbsier I'd be,... more

Previous reviews:
Nov 29	-	"Unique Love"